Monday, June 16, 2014

Playing Caregiver for a Significant Other

I don't know if anyone reading this is acting as a caregiver for a significant other.  Let me tell you, it is not easy.  In all honestly, in many ways it is not that different from taking care of a child with seizures.  I know for me, it brings out that parental instinct.  It's extremely difficult separating that from the actual relationship; the romantic, loving, adult connection.  
This is something that is simply not talked about- weather it be with your significant other or anyone else.   There are times I have to remind myself that this is my fiancee, not a child I am caring for.  I have finally started telling myself that he is an adult, he can make his own choices, even if it is things like remembering to take your pills.  I can only control so much.  Ultimately I cannot make him stop what he is doing to take his pills, or get him to actually drink water throughout the day.  I can tell him; I do and always try to help him take care of himself, especially when it comes to things like nutrition.  I want so much to be able to make him do these things, but I have to continually remind that he IS an adult, and he will make his own choices.  
I think this is the hardest part when it comes to separating the relationship from the nurturing, protective side.  How do you protect and make what you know are the right choices for an adult living with epilepsy?  You can't.  You have to remind yourself of this every single day.  
This is something people don't tell you about acting as a caregiver for an adult.  Never mind that it is hard to even find another caregiver for a significant other.  Ultimately, this is part of the reason I am doing this blog.  People need to see the other side of a disability; the real life, day to day aspects and how we make it through this life.  

Sunday, June 1, 2014


I will post again soon, I promise.  Ok, I probably shouldn't make a promise like that.  I promise I want to post more often... My life has been weird lately.  A bit overwhelming at times, stressful, exciting.  Many different emotions floating around.  I wish everyone well.  I just know right now, there are too many things floating around in my head to organize myself enough to post something substantial, or even just readable.  I promise I am still around.