Chris called me tonight when I was at work. He said I was the first person on his phone so he called me. He didn't know where he was, what was going on, or me. This is the first time he has called me following a memory loss seizure when he didn't remember me. It honestly threw me for a loop. But this just goes to show how much seizures change and evolve. Every seizure is different, every postictal state (this is the period following a seizure in which the brain is recovering) different. In my experiences, often those living it forget that the brain does have to recover following a seizure. This is why, when I was wandering the workroom floor bleeding with no concept of what was going on around me or even thinking to call 911, my memory of what happened and what actually happened are so different. I was not in a state of mind that would have allowed me to process everything correctly and make decisions accordingly.
I didn't think my experience tonight would have lead to this thought process, but there it is! I hope to use this blog not just to tell my story, but also as a way to spread Epilepsy awareness. I want the world to see Epilepsy as it really is, not as depicted in movies or on TV. Hollywood's depiction of seizures is vastly different from what they really look like. Please remember that next time you see a seizure on TV.
Saturday, March 8, 2014
I have decided that if you can't laugh at your own life, especially when going through things like this, you just might go crazy. Actually, that has been my attitude over the past couple years. Granted, if other people make the same kind of jokes, it is insulting and distasteful. So just a memo to those of you out there who don't live this life, don't make jokes about seizures. There are more people out there than any of your realize who do have, or have a loved one, with seizures. Thank you, and always remember to laugh.