Tuesday, September 16, 2014

Seizure Alert Dog

Ok, now the fun starts...Or just gets REALLY expensive!
We got a puppy on Friday.  Absolutely adorable.  She's a Rhodesian Ridgeback mix, and we have named her Luna.  Apparently these are very intelligent dogs, and they get big.  Actually, in the 3 days we've had her, Chris has been working on some basic training, and she already has sit, lay and stay.
She's picking up things very fast.

The next step is training to be a service dog, specifically a seizure response dog.  This is where it gets tricky, and potentially extremely expensive.  Seizure dogs themselves, after all is said and done, can run anywhere from $20,000 to $25,000.  This is why we felt getting a puppy ourselves would be more financially feasible.  We will train her as far as we can on our own, but at some point, we will have to turn to a trainer.  This is the part I am scared of.  Currently I 'm in the process of trying to pin down a place that will do the training, and get a general idea of costs.  In the mean time, I have included on the left hand side of this blog a button (through PayPal) to donate that says "Support Epilepsy Awareness".  Anyone out there who desires to help can donate there   All funds will go to training for Luna (that's her name, by the way), and if there is any left over will be donated to either the Epilepsy Foundation, or charities that go to help those trying to obtain a seizure response dog.

I must say, I think just having Luna at home with him is helping Chris in more ways than I can count.  It has only been a few days, but I am seeing such a change in him that nothing else to this point has been able to do.  Additionally, he is now fully off Keppra, thank goodness.  That in and of itself gave him back so much of the energy he had lost to all the medications, and his moods are better overall.  Seeing that all this combined makes me feel like there is hope again.  I just hope and pray that things continue like this.

I also want to take a moment to thank everyone for following my blog, and all the support I have received.

Oh, and I almost forgot!  Soon I will also have available for purchase bracelets for Epilepsy Awareness.  This is something I have wanted to do for a very long time, and I'm finally doing it.  Again, all proceeds for that will first go to training Luna, and after that be donated to help raise awareness for Epilepsy.

Monday, July 21, 2014

Concussion?!

Alright, I suppose I have to start with two days ago...
I leave for work at 12:30 and everything was fine.  I called Chris around 5:00 and all was good, he told me about his day, we chatted a bit.  And than comes 7:30....  I get a message from him asking "Are you my Jess?"  And sadly, I know exactly what's going on.  I called him to fill in some of the void the seizure left behind.  Aside from having an idea of who I am, he knew nothing and was terrified.  As it turns out he was unable to talk at that point, so clearly the seizure was shortly before.  I called him again on my way home so as not to scare the hell out of him when I opened the front door.  Well, he lets me know he's in his "hidey hole".  His "hidey hole" happens to be my closet.  Now here's the funny part about that.  All our closets are pretty small.  Mine is quite a bit larger, but it's above the stairs, so half of the floor is sloped up. So I walk in the front door, call up that I'm home, grab a few things and head up.  Of course when I opened the closet door, there he is with his laptop and blanket. It took a bit but I am finally able to get him out of the closet and onto the bed.  After hanging out, gaming together a bit, we put away the laptops.  We're in the middle of refilling our pills and I asked him something a couple times with no response.  Now at this point, as he's still working on his pills while rocking back and forth, I finally realize he's having an absence seizure.  Some of his absance seizures are different as he will be able to continue with whatever he may have been doing, can hear me and comprehend what's being said, he just can't talk or move very fast.  So this continued for a while until I was able to get him situated.  Without getting into all the details, this continued for at least a good 10 or 15 minutes.  I was long enough that I was ready to call 911, and it takes a lot for me to reach that point.  Live with all this for long enough and you know what's "normal" and what isn't.  This was not normal, it lasted far too long.  He finally came out of it and we both spent the remainder of the night attempting to calm down.
And than yesterday.
Chris wasn't "recovered" by any means, but he was doing ok.  Better than the day before anyway.  So I leave for work as usual, and around 4:30 I get a message from one of his gaming friends saying he was talking kind of weird.  I call him and not only did he forget about the prior topic, he informs me that he is having a difficult time walking.  He's also not talking clearly, seeming to have a hard time with his words.  So I ask him if he hit his head.  The answer was yes, although he has no idea of when it happened, where, or what happened.  This is the point where I know he is not ok, and absolutely should not be alone.  Within 20 minutes I was home.  He was still the same, though as soon as I said the word "hospital", he started trying to make a point that he really was ok.  I spoke with his mom and we were able to determine that it couldn't have happened more than an hour and a half prior.  So I get him on the couch and the frist thing he does is lay down, and a few minutes later. started falling asleep.  I had to stop him several times before he sat up.  We spent most of the rest of the evening gaming, with me looking over ever few minutes to be sure he was ok.
Needless to say it's been rough lately.  The heat and no central air conditioning, combined with thunderstorms combined with lowering his keepra have kept his seizure activity high.  These are the times that scare me. It seems as though it can't get any worse, and it does.  These are also the moments that remind me how much I love him.